Links to Sources of Information about

Deafness/Hard of Hearing

Return to Links Page

 

"Quick Click" Index

Click on the green button next to the organization name to see a detailed description of the site before visiting it, or simply click on the link to go to the site now.

 

  Advanced Bionics  www.cochlearimplant.com

  Alexander Graham Bell Association for the Deaf and Hard of Hearing  http://www.agbell.org

  Auditory-Verbal International, Inc.  http://www.auditory-verbal.org

  Basic Information about Hearing Loss for Parents  www.sculerati.com

  BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc.  http://www.beginningssvcs.com

  Center for Hearing Loss in Children, Boys Town National Research Hospital
    
http://www.boystownhospital.org/parents/info/index.asp

  Clarke School for the Deaf, Oral Deaf Education  http://www.clarkeschool.org

  Cochlear Implant Association, Inc. (CIAI)  www.cici.org

  John Tracy Clinic  http://www.johntracyclinic.org

  Listen-Up Web!  http://www.listen-up.org

  My Baby's Hearing  http://www.babyhearing.org 

  National Early Childhood Technical Assistance Center (NECTAC), The  www.nectac.org

  National Information Center of Deafness  http://clerccenter.gallaudet.edu/index.asp

  National Institute of Deafness and Other Communication Disorders, The (NIDCD)  http://www.nidcd.nih.gov

  Soundings Are Nucleus News [newsletters from the Cochlear Corporation]  www.cochlear.com

  Speaking for Myself [in English and Spanish]  www.oraldeafed.org

  Universal Newborn Hearing Screen and Follow up Services in North Carolina (UNHS) www.ncnewbornhearing.org

 

 

www.cochlearimplant.com
Advanced Bionics.  Link to Advanced Bionics website to learn about their cochlear implants.  Some technical information, but contains a good section on frequently asked questions.

 

 

http://www.agbell.org
Alexander Graham Bell Association for the Deaf and Hard of Hearing
This non-profit organization exists to encourage people who are deaf or hard of hearing to communicate by developing maximal use of residual hearing, speechreading, and speech and language skills.  It is also one of the world’s largest membership organizations and information centers on pediatric hearing loss and the auditory approach.

 


http://www.auditory-verbal.org

Auditory-Verbal International, Inc.
  Auditory-Verbal International, Inc (AVI) is a private, non-profit international membership organization whose principal objective is to promote listening and speaking as a way of life for children who are deaf or hard of hearing. AVI's goals are to heighten public awareness of the Auditory-Verbal approach, ensure certification standards for Auditory-Verbal clinicians and teachers, provide quality educational opportunities for parents and professionals, and facilitate networking among the professional and lay communities.

 


www.sculerati.com

Basic Information about Hearing Loss for Parents by Jane Madell, Ph.D.  Question and answer format with links to other resources. Very simple site for parents and professionals.

 


http://www.beginningssvcs.com

BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc.
  BEGINNINGS for Parents of Children Who are Deaf or Hard of Hearing, Inc. has been established since 1987 to provide emotional support and access to information for families with deaf or hard of hearing children, age birth through 21. They provide an impartial approach to meeting the diverse needs of these families and the professionals who serve them. (These services are also available to deaf parents who have hearing children). The mission of BEGINNINGS is to help parents be informed, empowered, and supported as they make decisions about their child. This website is easy to navigate and includes topic areas such as early intervention, communication options, audiology and assistive technology, and school issues. With lots of wonderful links and a FAQ section, this website serves families and professionals alike.  

 

 

http://www.boystownhospital.org/parents/info/index.asp
Center for Hearing Loss in Children, Boys Town National Research Hospital. 
The Boys Town National Research Hospital is a nationally-oriented clinical and research facility dedicated to the study and treatment of children's communication disorders. The efforts of the Hospital's multi-disciplinary staff are closely coordinated with the programs of the Center for Hearing Loss in Children.


www.clarkeschool.org

Clarke School for the Deaf, Oral Deaf Education. 
For more than 130 years their auditory/oral programs have taught deaf and hard of hearing children to listen and talk. They offer many training opportunities for teachers and professionals working with Deaf and hard of hearing children, and they have many resources to help individuals of all ages who experience hearing loss.

 

www.cici.org
Cochlear Implant Association, Inc. (CIAI). 
Formerly Cochlear Implant Club International, Inc., CIAI is a non-profit organization for cochlear implant recipients, their families, professionals, and other individuals interested in cochlear implants.  CIAI provides support and information and access to local support groups for adults and children who have cochlear implants, or who are interested in learning about cochlear implants.  CIAI also advocates for the rights of and services for people with hearing loss.

 

http://www.johntracyclinic.org
John Tracy Clinic. 
John Tracy Clinic provides, worldwide and without charge, parent-centered services to young children with a hearing loss offering families hope, guidance and encouragement to help the children learn to communicate. The Clinic also offers services to aid the professional community in understanding how to work with deaf children. This site has a great FAQ page. (website in available in Spanish)


http://www.listen-up.org

Listen-Up Web!  A one stop place for information, answers, help, ideas, resources and anything else related to hearing loss. The webmaster has dedicated years to gathering information and developing products geared to the special needs of hearing impaired children and their families, and professionals who serve them.  He has first hand experience dealing with hearing loss.  Good website to check DAN information.

 

 

http://www.babyhearing.org

My Baby's Hearing.  Boy’s Town National Research Hospital formed this website as an informative resource for parents of babies with hearing loss, but it is provides a wealth of information for caregivers of infants with hearing loss as well.  Not only does this website teach about the ear and how it works, it also describes different types of hearing loss a baby may have and discusses causes for these hearing losses.  It answers many questions about the various styles of hearing aids and assistive devices available for young children today. There is a small section that discusses cochlear implants as an option for some babies with hearing loss.  This website teaches parents what type of testing to expect for their child in future months and years.  It explains in detail the importance of the Universal Newborn Hearing Screening and what it means if a child fails the screening.  The website also helps parents read and understand an audiogram.  This is especially important, as an audiogram will be used many times during future hearing testing. 

 


www.nectac.org

The National Early Childhood Technical Assistance Center (NECTAC).  This website supports the implementation of the early childhood provisions of the Individuals with Disabilities Education Act (IDEA).  This technical assistance focuses on early childhood research, “best practices,” and policy and legal issues.  The mission of the Center is to strengthen service systems to ensure that children with disabilities (birth to 5) and their families receive and benefit from high quality, culturally appropriate, and family centered supports and services.  Through the website the knowledge base of early intervention and early childhood special education is made available in a variety of formats. 

 

The information provided on the website is aimed at state level administrators responsible for planning and implementing services under IDEA.  A broader audience includes state Interagency Coordinating Councils (ICC), other state agency personnel, services providers, community in higher education representatives, and families. 

 

NECTAC provides a comprehensive knowledge base of early intervention and early childhood special education available through its website.  The information is acquired, organized, and disseminated by:

  • Affiliating with the Educational Resources Information Center (ERIC)

  • Producing documents about early childhood programs and projects

  • Hosting an annual national conference

  • Publishing eNotes, an electronic newsletter for early childhood/special needs community

Because of the breadth and depth of the information database, information on virtually any topic related to early childhood education can be accessed. 

 


http://clerccenter.gallaudet.edu/InfoToGo/index.html

National Information Center of Deafness. 
Laurent Clerc National Deaf Education Center at Gallaudet University works in collaboration with other schools and programs throughout the nation to improve educational results for deaf and hard of hearing children in the three priority areas of literacy, family involvement and transition. Encourages the use of sign language and nurturing deaf education.


http://www.nidcd.nih.gov
The National Institute of Deafness and Other Communication Disorders (NIDCD). 
The N I D C D conducts research on disorders of human communication, including on hearing, balance, smell, taste, voice, speech, and language. This site includes a nice section for teachers and children (interactive).

 

 

www.cochlear.com
Soundings are Nucleus News (newsletters from Cochlear Corporation). 
Link to the Cochlear Corporation website, and learn more about their different cochlear implants. Highly technical information, but also contains a nice section on recipients and their stories.  Loud and Clear, Strategies and Bionic Beat (newsletters from Advanced Bionics).

 


www.oraldeafed.org

"Speaking for Myself" in English and Spanish by the Oberkotter Foundation.  This program promotes spoken language. Here, you will find specific information about oral-deaf schools and their programs and services, and other information on oral deaf education in their library. Contains a search page to help you find a specific topic.

 

 

www.ncnewbornhearing.org
Universal Newborn Hearing Screen and Follow Up Services in North Carolina (UNHS)
Though this website is still under construction, it already contains a lot of valuable information.  A slideshow gives an overview of Universal Newborn Hearing Screening in North Carolina and the state departments involved in coordinating the screening results and follow-up services for babies that are identified with physiologic hearing loss. The site also contains a listing of birthing facilities throughout the state, including contact information for the UNHS coordinator for that facility.  Other features include contacts and resources throughout the state, including speech and hearing team consultants and the counties they serve.

 

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