The purpose of this page is to provide an overview of the Research Registries offered at CIDD to parents of infants, typically developing preschoolers, and school-age children.
What Registries Does CIDD Operate?
The CIDD currently operates 4 Research Registries: The Intellectual and Developmental Disorders Registry, The NC Autism Registry, The Fragile X Registry, and The Child Development Registry.
Intellectual and Developmental Disorders Registry is a national registry of adults and children with specific syndromes such as Angelman, Down, Prader-Willi, Rett, Turner, Williams, and others. It also includes individuals with developmental delay, ADHD, communication delay and intellectual disabilities.
NC Autism Registry
is a state-wide registry for children and adults with autism spectrum disorders.
Fragile X Registry
is a national registry of children and adults with FXS.
Child Development Registry
is a Triangle-area registry (NC counties: Wake, Chatham, Durham, Alamance, and Orange) of typically developing infants and children. Investigators can
use this registry to recruit participants and age matched control subjects, and to pilot test assessment measures and protocols.